Australian Lyme Facts

Australian Lyme disease is:

  • Reported in all states & territories
  • Non-discriminatory, affects anyone at any age
  • An estimated 20,000 Australians will become tick sick each year
  • Causes mild, moderate and severe symptoms and can be fatal
  • Often dismissed or misdiagnosed by doctors
  • Mimics other diseases like Multiple Sclerosis, Parkinson’s, Alzheimer’s, Motor Neurone disease, Chronic Fatigue Syndrome and Autism to name a few
  • There is no test for Australian Lyme disease

Australia Lyme disease patients:

  • Suffer discrimination and are stigmatised within the health system
  • Have limited access to doctors due to medico-legal threat
  • Can’t access appropriate treatment, but recover when they do
  • Suffer 10 years of chronic illness and see more than 13 doctors
  • Travel more than 500km to access appropriately trained doctors
  • Suffer a burden of illness that impacts them financially and socially

Australian Lyme disease is preventable:

  • Awareness, education and proper protective measures help
  • Avoid tick bites, use DEET based sprays, wear light coloured, long sleeves and pants
  • Check for ticks after outdoor activities

Snap, Send, Solve

Snap Send Solve is the easiest and most efficient way to notify local councils, utilities or other authorities of issues that need addressing in your community.

If you are caring for someone with Lyme disease and they have difficulty navigating the built environment due to inaccessible things or obstacles, you can quickly take a picture of the issue, send it to your local council and have the problem solved.

Its a great App for reporting things in the community and getting change happening, like access to shops, stairs, heavy doors, accessible parking and more.

Helpful Books

Whether you have recently been diagnosed, you’re caring for someone with Lyme disease or you’re curious to learn more about this condition, there’s an abundance of information, personal stories and knowledge among the resources below.

From story books for children through to extensively researched medical accounts, there’s a book here for everyone – no matter what stage of the journey.

General and medical information

Lyme disease in Australia
By Dr Nicola McFadzean  

Naturopathic Physician, Dr Nicola McFadzean, provides readers with a current snapshot of Lyme disease in Australia. Covering the history, politics and science behind the illness, as well as practical diagnostic and treatment guidelines from both a holistic and pharmaceutical perspective.

Lyme Natural
By Amina Eastham-Hillier  

Amina Eastham-Hillier brings 15 years of Naturopathic clinical practice and 25 years of nutritional practice together, to offer insight on treatment protocols for chronic Lyme disease, Lyme-like infections, co-infections and mould illness.

Why can’t I get better?
By Richard I. Horowitz MD  

World-renowned Lyme disease medical practitioner, Dr Richard Horowitz, shares his overarching approach to Lyme and chronic illness in this revolutionary book. Dealing with everything from symptoms to scientific research, treatment plans and politics, this is a must-read for anyone impacted by Lyme disease.

How can I get better?
By Richard I. Horowitz MD  

Following on from the success of his ground-breaking book, ‘Why Can’t I Get Better?’, Dr Richard Horowitz returns with a new handbook featuring updated research and an actionable step-by-step plan for implementing his 16 Multiple Systemic Infectious Disease Syndrome (MSIDS) Diagnostic Map to ensure better health.

Lyme: The First Epidemic of Climate Change
By Mary Beth Pfeiffer  

In this book, Mary Beth Pfeiffer explores the idea of Lyme disease being the world’s first epidemic as a result of climate change. Previously contained to certain areas thanks to the cooler climates, Lyme disease is now rapidly spreading and affecting an increasing number of people around the globe. This well-research account shares the stories of individuals and their families impacted by the disease.

Autobiographies & personal stories

Gone in a Heartbeat: A Physician’s Search for True Healing
By Neil Spector MD

Leading American Oncologist, Dr Neil Spector pens a compelling memoir about his experience with Lyme disease. Sharing stories of courageous patients, he challenges us to look beyond the medical industry and become more informed about our health. “To recognise that we are in control of our own bodies and destinies can be a powerful step towards true healing.”

Believe Me: My Battle with the Invisible Disability of Lyme Disease
By Yolanda Hadid  

Dutch-American television personality, Yolanda Hadid, candidly opens up about her experience with Lyme disease in her book ‘Believe Me’. Navigating the complexities of diagnostic testing, conflicting medical opinions and mysterious symptoms, Yolanda provides an emotional but inspiring story that many people with Lyme disease will relate to.  

Bite me: How Lyme Disease Stole My Childhood, MadeMe Crazy and Almost Killed Me
By Ally Hilfiger  

Following years of undiagnosed health issues and an eventual crisis at just eighteen, Ally Hilfiger was diagnosed with Lyme disease. In this compelling narrative, she shares the highs and lows of her journey back to health; offering readers hope and courage to transition from victims to survivors.

For family, friends & carers

The Lyme Book for Family, Friends and Caregivers
By David Kent  

Learning that a friend or family member has been diagnosed with Lyme disease can be a tricky time. What is Lyme disease anyway? How do you treat it, and how does it affect them? All of these are common questions that David Kent does a great job of addressing in his book specifically written for family, friends and caregivers.

When Your Child Has Lyme Disease: A Parent’s Survival Guide
By Sandra Berenbaum and Dorothy Kupcha Leland

Lyme disease can cause puzzling symptoms in children, including pain, fatigue, gastrointestinal upsets, learning disabilities, behavioral issues and psychiatric problems. The illness can be hard to diagnose, however, and Lyme-related controversies in the medical world complicate the picture even more. Parents trying to find help for their suffering children often don’t know where to turn.

For children

Nick, the No Good, Icky Tick
By Karen Gloyer  

Written by Lyme disease survivor, Karen Gloyer, Nick, the No Good, Icky Tick is an informative picture book following Abby and her dog as they discover a tick out on a walk one day. The book is designed to teach children and their families about tick bite prevention and awareness while outdoors, and provides some helpful tips to keep safe.

Grace and Scout
By Michele Morgan and Lauren Lovejoy  

This children’s story, written by Michele Morgan and Lauren Lovejoy, is about Grace and Scout who are best friends. One day Grace gets sick from Lyme disease and the pair have to navigate the changes in their friendship. This book is a wonderful tool to teach children the importance of true friendship especially in the face of illness.

Lyme Education

For many people encountering Lyme disease, understanding, diagnosing and treating Lyme disease can become confusing and overwhelming.

To help patients get a better understanding of the disease and its various treatment options, Dr Nicola Ducharme, a Naturopath has put together a ‘Lyme Ed’ program.

The program includes over 20 hours of online training across 10 different modules with access to a broad range of supporting materials. Lyme-Ed answers lots of common questions including:  

  • what to do if antibiotics stop working
  • strategies for emotional healing
  • ways to break through detrimental neural pathways
  • 10 factors hindering recovery.

Lyme-Ed includes modules on:

  • Detoxification and how to support it
  • Nutrition and reducing inflammation
  • Managing common symptoms including pain, mood imbalances, cognitive deficits and fatigue.

Anyone can enrol in the program.