Lyme disease can feel very isolating but it’s important to know that you’re not alone.
Having support is an essential part of managing Lyme disease, and it can come in many shapes and sizes.
The support of your friends and family is an important part of your journey but friends and family may not have the same understanding as another patient. Having other patients who understand what you may be going through is very helpful. You’ll hear this referred to as having a ‘lived experience’.
A wide range of patient support groups and resources are available. Some online groups support patients in any location, others are location specific and meet in person.
If you’re looking to meet other patients, we encourage you to join the online groups:
- Lyme Disease Association of Australia
Keep up-to-date with all the latest Lyme disease news in Australia.
- Lyme Australia and Friends
A national group of Lyme disease patients and carers.
- Aussie Lyme
A group for the latest scientific information on Lyme disease.
- MSIDS Inc (Formerly WA Lyme Association)
Offers a public online bulletin board.
An online group for Lyme disease sufferers in South Australia.
- Lyme Disease Victoria
An online group for Lyme disease sufferers in Victoria.
- Canberra Lyme Disease Support
An online group for Lyme disease sufferers in Canberra.
- Brisbane Lyme Group
An online group for Lyme disease sufferers in Brisbane. This group also holds a regular meetup.